Caleb is not a baby anymore, as you can see. He is a boy now! He is doing really good. We see much less seizures around here nowadays, like average one cluster a week. I think the Ketogenic Diet is the biggest factor of the seizure control. Steroid was not the reason why, as we initially believed, because when we actually tried the 2nd run of the regimen of steroid, Caleb had even more seizures. So we decided not to continue, with the consent of Caleb's neurologist. Not only the steroid did not stop the seizures, but it made Caleb so miserable for the 5 days he was on it.
We now have a developmental aid come to our house for 2 hours a day, 5 days a week. I think it is already making a difference, especially with his hand motor skills. But we heard that the service will be cut to 1 hour and a half due to the budget cut from the government. I am not happy with it, obviously, but it is better than not getting any service at all.
Physically, I think Caleb is at between 3-6 months stage, where he cannot sit up by himself yet, but can hold up his head on his tummy and roll... You might think I would feel sad about it. But, you know what? Actually I am happy with the progress he's been making, because I still remember vividly the days when I was wondering if Caleb would be stuck forever and would not develop any more. Because Caleb didn't cry a real cry for months(we thought he was just being mellow, but looking back, he was not well enough even to cry) when I see him cry on top of his lungs, that actually makes me happy! And who knows? Caleb might indeed catch up someday! We are hopeful today and we will remain hopeful tomorrow whatever life throws at us!
