Ketogenic Diet update

It's been a week since Caleb started the Ketogenic Diet.

We came home on Thursday with a ratio of 2.5:1 because Caleb's keton level was pretty good already on that ratio. But when we came home, we went through a major trial and error period, learning how to properly mix his special formula. The main thing was the water temperature. The KetoCal formula dissolves in around 45-50 degree Celsius, and even though I made sure the water temperature was correct, what happened , I think, was when it was poured into the big jug, the jug cooled down the temperature of the water and thus the formula didn't dissolve properly. As soon as we realized it, we fixed the problem by making the water a little bit hotter.

But the main thing I wanted to share is that the Ketogenic Diet seems to be working! On Friday, Caleb was a TOTALLY different baby. He was smiling all day, cooed and even laughed!

After that Caleb had a few rough days while we were figuring out how to make the formula right, but again today, he was a very happy, smiley baby. Even though he had a few jerks today, they were way milder and shorter than before.

It is probably too early to tell, but we may have found the miracle we were asking for.

By the way, his diet ratio went up to 2.75:1 since this morning.

When I see these pictures, Caleb reminds me of ......

This boy from Where the Wild Things Are.

The new Keto kid on the block

Here we are, at the hospital again!

This time, it is to initiate the Ketogenic Diet for Caleb.

We will be here for a few days, and they will monitor Caleb.

I learned that on the Keto diet, we should be careful with those hidden carbs in things like toothpaste, children's Tylenol(liquid form) and so on.

Yesterday we watched a movie called "First do no harm" -This is made by Jim Abrahams, whose son had epilepsy and was cured by the Ketogenic diet. Jim was the one who sparked the interest in the treatment and caused a big movement to revive the "old-day" method.

I realized how lucky we are to even be able to try it this early. Back when Jim Abrahams son, Charlie was failing all the medications about 2 decades ago, no doctor really suggested the Ketogenic Diet, but Jim found the diet himself through books studying relentlessly to find the "cure" for his son. Now, the Ketogenic Diet is not treated as anecdotal, but one of the first line treatment options for children with refractory seizures.

Here is the link to the Charlie foundation in case you want to know more about this diet.

http://www.charliefoundation.org/

Do we look too happy in the hospital room??